I had an appointment today with my new neuromuscular doctor. I was very nervous, since I had been with one doctor for the past 12 years.
As Dr. Veda put me through my "muscle strength" paces, he kept frowning.
And then I received a bit of a shock. While he was suprised at the level of weakness I exhibited and recognizes that something neuromuscular is going on, he is not sure it is myasthenia gravis. Or, it may be that I have MG and something else besides. Dr. Veda is not sure that the doctor who originally diagnosed me (the one before the 12 year doc) made the correct diagnosis.
From what I gather, this is not uncommon in the neuromuscular realm. My symptoms could be MG, but they could also fit a number of other neuromuscular diseases as well. All I know is what my body will and will not do.
So, for now, we start over. Nerve conduction test #7, more bloodwork, and maybe a new diagnosis. Maybe even new hope for some treatment that might help me function more normally.
Stay tuned.
Tuesday, August 14, 2012
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