Well, the good news is that I finally got my stitches out today. And, while I still do not have an official diagnosis, I know what I don't have. I do not have muscular dystrophy. I do not have myasthenia, lupus, multiple sclerosis or anything autoimmune. But, my muscle fibers show signs of atrophy and we need to know why.
Dr. Veda continues to do testing on my samples for mitochondrial diseases. He seems to think that is the problem. We just have to find out which kind I have. Samples will be sent off, and results can take months to come in. I just have to be patient. I do have patience...somewhere!
Meanwhile, I just keep doing the best I can with what I have to work with. Some muscles are weaker than others. I still fatigue with ridiculous ease. But, I am thankful for what I do have. A visit to the neurology unit at University Medical Center makes it abundantly clear that things could be MUCH worse.
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